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Post by mandymo on Mar 6, 2009 4:46:06 GMT -5
Hi everyone,
Ive received a letter with results from when they were investigating my low estrogen, I had been on armour and dont really understand results..strange??
Barts are in dispute about theother hospital just trying to stick me on hrt and i am waiting to be admitted for pit scan and investigations adrenals etc
I just wondered what you thought about these results:
Random Cortisol 347 (think it was about 4pm no times given) T4: 12.0 TSH: 0.93 SHBG: 92 Testosterone: 1.7 Progesterone: 1.5 FSH: 6.8 LH: 11.2 oestradale: 175 endo thickness: 1.7mm Polycstic ovaries 12 follicules <10ml in diameter
Was on one grain of armour 10 mg DHEA
My Gp disagress with the hospital as above who was testing for amenoreah. They have also said they are conatcting barts re my brain scan in the letter aswell, but my doctor said its not even of my pit gland, so we are blowing this hosip[tal out and going straight to barts.
Neuro at Barts has commented advising its obviously endocrine condition..so its positive but just wondered what you thought as my T4 seems to be lower it was 13.2 now its 12 and my tsh is lower again..
Thanks Hugs Mandy
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Post by Lethal Lee on Mar 7, 2009 7:14:50 GMT -5
Hi Mandy,
Hardly worth the wait were they? They certainly didnt put themselves out at all. I mean this testing was just so basic its ridiculous!
Ive received a letter with results from when they were investigating my low estrogen, I had been on armour and dont really understand results..strange??
Barts are in dispute about the other hospital just trying to stick me on HRT and I am waiting to be admitted for Pit scan and investigations adrenals etc
I just wondered what you thought about these results: --------------------------------------------------------------------- Random Cortisol..... 347 (think it was about 4pm no times given)
Well a random Cortisol especially one taken at 4pm in the afternoon tells you nothing. Especially without a range. In fact you will be hard pressed to find a range for that time of day.
What should have been done was 8am Cortisol & ACTH, ACTH Stim , 8am Aldosterone/Renin, etc!!!! Even a 24 hour Cortisol & Aldosterone would have ben better than this! --------------------------------------------------------------------- TSH:.........0.93 *on one grain of armour T4:...........12.0 *Is this free or total? Wheres Range?
Tells you nothing at all. Just that TSH is suppressed as you are on Armour (no surprise). Total T4 tells you nothing. What you needed was BOTH Frees, Thyroid Abs, Reverse T3 ---------------------------------------------------------------------- on 10 mg DHEA Testosterone: 1.7 SHBG: 92 Estradiol: 175 Progesterone: 1.5 FSH: 6.8 LH: 11.2
Where are the ranges? Cant interpret without ranges??? Incomplete testing need FREE Testosterone & DHEAS as well!!! I mean you are on DHEA & they dont bother testing these things? Were these tested fasting early am? If not then Testosterone, SHBG are not valid either (peak in am). ------------------------------------------------------------------------ Endo thickness: 1.7mm Polycystic ovaries 12 follicules <10ml in diameter
I know from what you've said previously that endometrial thickness was not good. Also that you already knew you had Polycystic Ovaries.
Dont these people actually interpret & comment on results, provide ranges, suggest treatment, further testing? -----------------------------------------------------------------------
My GP disagrees with the hospital as above who was testing for amenorreah. They have also said they are contacting Barts re my brain scan in the letter as well, but my Dr said its not even of my Pit gland, so we are blowing this hospital out and going straight to Barts Good I hope she gives them an earful. Better yet reports them for not fulfilling "duty of care" & doing appropriate MRI & testing
Neuro at Barts has commented advising its obviously Endocrine condition....so its positive but just wondered what you thought as my T4 seems to be lower it was 13.2 now its 12 and my TSH is lower again.. Glad the Neuro is prepared to say that. One specialist in your court! However as its not HIS area of expertise he can only say definitely not a "Neuro" problem.
TSH ignore when on full Armour dose will be undetectable & thats perfectly fine & what is supposed to happen.
Again is that FT4 or T4? Total dont mean athing. Not even worth wasting blood to test it. If it is FT4 UK ranges are ~10-25 therabouts? FT4 of 13.2 & 12 are BOTH far too low of course & show Hypot & undertreatment.
Its very common when on low dose of Armour for toolong that Frees will DROP initially. Your own Thyroid production drops & often more than the amount you are adding in. Net result you are MORE Hypo than when you started. You need to keep INCREASING Armour till eventually the Frees increase to optimal levels.
Of course YOU cant do this yet because you are not getting proper Adrenal testing, DX or treatment!!!!
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Post by mandymo on Mar 7, 2009 18:02:34 GMT -5
Thanks hun, Hope your okay!1 Yep I agree with everything your saying, Barts are having me in for testing this time i think its over a couple of days. THe other hospital just ran a few blood tests and fobbed me off!!! I have confidence I will get my answer at Barts!! So, really Iam not doing my self much good then taking the armour!!.. I feel okaish at the moment much better mentally on the diet as I was struggling with candidas everywhere..i am definatley better mentally on the diet. I do keep having moments of feeling sick and if i dont drink any tea i know i shouldnt i struggle to function... Iam sorry about the ranges thats how th eletter came no ranges!!!! TYpical lol.. Yeah Barts said i am to just go there for everything they are also sending me to there neuromuscular clinic after me travelling to north london to a "neuromuscular clinic" that i must go to ...only to be told it was gen neurologist!!! I was so anouyed and upset, Id been taking hrt which made me feel really ill. MY stomache was swollen, had terrible heache and felt a dull sort of stomache ache all the time and fear something terrible was gonna happen..awful!!! So, any way Barts said Iam to go there for all of it. I am getting there just so slow!! I am loosing my eyebrows aswell trying to pencil them in , very patchy !!! Thankyou I'll post when i have some news xx
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Post by justaustin on Mar 7, 2009 19:34:38 GMT -5
Mandy, When you go for you appt(s), be sure that you don't doll yourself up. No make-up, no painting on your eyebrows.. Let them see you as you are. Dark circles,missing eyebrows and all. Good luck. ((((HUGS)))) Laurie
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Dana
New Member
Posts: 85
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Post by Dana on Mar 7, 2009 22:33:50 GMT -5
Laurie is right! Don't do your makeup at all. Don't have your morning coffee (if you need that to get moving). Just go in there with no makeup so they can see you for you.
Let's just say, I plan on making myself look as terrible as possible the day I go to see the endo!!
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