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Post by secondarylucy on Jan 6, 2009 20:13:24 GMT -5
New doc told me to take my entire Medrol dose (6 mg) in the morning so that my body can produce its own during the rest of the day. Is it okay to take the 6 mg all at once? I'm asking because I don't want to have any negative side effects. Please Help.
Sincerely,
Lucy
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Post by Lethal Lee on Jan 7, 2009 3:50:48 GMT -5
Hi Lucy, I would stick with what you know works for you. How are you dosing it at present? Why did you decide to dose it that way? The Endo probably believes that Medrol has a long enough effective life to last a full 24 hours. They say the same for Prednisolone & for Florinef. The truth is it is very individual. Some may do OK that way. Some dont. I am on Prednisolone & initially I dosed 3 times a day as I felt it wear off after ~8 hours. Some time later I can now do twice daily dosing dosed 12 hours apart. No way I could cope with ONCE daily dosing. Its no different to HC. Some can do every 4 hours. Some five some only 2-3 hours. The last was me & the reason I had to go on longer acting steroid in the first place. I also have to do twice daily dosing of Florinef for the same reason. There are others that dont need this & once daily is fine for them. Bottom line is dont let this guy bully you. Unless what you have been doing isnt working I would stick to what you are doing. Lie to the guy if it makes him happy. Assuming you wish to keep seeing him at all. I also saw that he wanted you off your Florinef. Were you on that after testing Aldo Renin Sodium & Potassium? Did you have symptoms that the Florinef has resolved? If so again I would tell this guy where to go. Better still dont bother seeing him at all ever again. Unless you have no other options/choices that is & needs must? I just had another thought. I think I've read that some Docs/Endos believe that once daily dosing is better than multi dosing. The reasoning being they think it is less 'suppressing' of the Adrenals & HPA axis or some such hogwash. Irrespective of all that you need to dose to minimise/eliminate your symptoms. Not to please this Endo or pander to his silly beliefs. He should be more concerned about the health, symptoms of his patient. There I go living in cloud cuckoo land again.
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Post by secondarylucy on Jan 7, 2009 5:40:22 GMT -5
Thank You Lethal Lee, from the bottom of my heart.
Doc told me to take it all in the am so that my body would be able to make its own the rest of the day. In other words, if I take the medrol all day long, my body won't have the chance to make its own. I don't feel a difference just yet in regard to taking it all at once as opposed to spreading it out during the day.
As for the Florinef, he told me to stop bc my pressure was on the high side (about 114 over 110). He wants me to check it periodically to see if its high on a regular basis. He told me the Florinef could be causing it. I have stopped for 3 days now and this is what is occuring. My edema has gone away. On the bad side, my urine is dark again and I think I am dehydrated again. Also, I am sweating profusely at night now. I did have a hysterectomy but I do still have my ovaries. I wasn't suffering from night sweats while on the Florinef.
I do have my internist who is the one prescribing me meds, however he keeps telling me I have to get off the Medrol bc of side effects down the line. He also hasn't tested me for any other Pituatary Hormone deficiencies bc it is not his specialty. In other words, he doesn't totally know what he is doing which is why I went to see this endo. I'm fustrated to say the least.
Sincerely,
Lucy
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Post by Lethal Lee on Jan 11, 2009 10:32:15 GMT -5
Hi Lucy,
Many Docs think you only need the longer acting steroids once a day. I dont agree its whatever works for you & eliminates symptoms of low Cortisol.
If it makes things worse go back to multi dosing. Dont let him make you ill.
If you need Florinef is very dangerous to just stop. Should have reduced by 1/4 tab a week until off.
Better still should have altered dose & timing, adjusted Sea Salt & Potassium to find proper balance.
If BP is high is likely you hadnt got the right doses/timing worked out yet. Symptoms returning when off shows you still need it. Was electrolytes tested when BP was high to see what was happening?
How is 114/110 high? Is he worried about the lower 110 result? I agree that high but really adjusting dose etc should have been done first.
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Post by secondarylucy on Jan 17, 2009 20:31:25 GMT -5
Lee, you were right! I returned to multi dosing and I feel good again. I really needed that late afternoon dose to function the next morning. Thank you for the great advice and encouragement.
I have BP results from the time I visited the ER recently. The first one was taken sitting when I was in Triage. Time was 8:22 pm. My Temp was 98.5, Pulse = 115 and BP = 165/110.
The second one was 3 hrs later at 11:35 pm. Pulse = 90, BP = 148/77 while laying down.
Sodium = 141 (No ranges given) Potassium = 4.1 Chloride = 102 Co2 = 30
Does that tell you anything?
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