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Post by tanyasw on Dec 22, 2008 10:13:51 GMT -5
I was wondering if someone could take a look at my log and let me know what they think about my thyroid... hormonesupportgroup.proboards.com/index.cgi?board=memberlogs&action=display&thread=185The last Endo I went to told me my thyroid was fine and no longer needed to be on Armour, even though I was diagnosed with a Pit tumor. Idiot. Anyway, the several doctors I have been to all disagree wether or not I have Hashi's. I know my antibodies test isn't helpful, because actual values weren't given. But is there a way you can tell by looking at my lab values over the past two years? Any insight would be greatly appreciated.
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Post by Chris Jackson on Dec 22, 2008 15:01:51 GMT -5
If you are on 2 grains of Armour, he can't say if your thyroid is fine, which thyroid don't get better anyway.
Thyroglobulin Aby: <20 Range: <20 ThyPeroxAb: <10 Range: <35
I can't say from those alone if you have Hashi's. If they are 19 and 9 then I would say yes, you do. I can say that from what I've seen Primary hypo with secondary AI always involves hashi's. I have yet to see an exception to this when thyroid antibody tests are given as actual values.
You're welcome, Chris
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Post by justaustin on Dec 22, 2008 18:31:30 GMT -5
I think that if you have autoimmune thyroid disease, that it is in the early stages.
It is also possible that thyroid antibodies are contained to the thyroid and haven't gotten to the bloodstream. If antibodies are positive via blood for Hashi's--great. The gold standard for diagnosing Hashi's is via fine needle aspiration/ biopsy/post-mortem exam.
Normal/healthy thyroid would have an even smooth texture (homogeneous).Heterogeneous appearance(pebbled/textured/uneven) is seen with autoimmune thyroid disease. It being mild, would suggest(to me anyway) it's in early stages.
Hypoechoic nodules (if you ever have ultrasound with this finding) is usually the result of lymphocytic infiltration of the thyroid associated with Hashi's.
Your ferritin is scary low. Are you taking iron? Optimal ferritin is required for the conversion of T4 to T3.
Glad you are actively addressing that scary low B12.
You know your body better than anyone else. Listen to your gut and common sense. Don't let a doc talk you into something you know is not in your best interest. Even if it means someone (other than an endo) treats your thryoid. You may need to kiss a lot of frogs to find a prince of a doc.
The various endo's you have been to---- Are they pituitary endo's with major pituitary centers/clinics/hospital?
Laurie
Laurie
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Post by crystallyn on Dec 22, 2008 21:47:31 GMT -5
If you are on 2 grains of Armour, he can't say if your thyroid is fine, which thyroid don't get better anyway. Thyroglobulin Aby: <20 Range: <20 ThyPeroxAb: <10 Range: <35 I can't say from those alone if you have Hashi's. If they are 19 and 9 then I would say yes, you do. I can say that from what I've seen Primary hypo with secondary AI always involves hashi's. I have yet to see an exception to this when thyroid antibody tests are given as actual values. You're welcome, Chris Chris- I have primary hypoT. and secondary AI. I don't have hashis. Every test (3) has been <3, <5 for anti-bodies and I've been hypoT. for a long time. I don't have highs and lows. I've also had a needle biopsy, of course they didn't tell me if I had hashis or not.
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Post by Chris Jackson on Dec 23, 2008 8:01:08 GMT -5
I thought you might respond. Crystal told me this when she came to see my doc, but couldn't tell me what her tests showed at that time. At 4 I start to suspect. At 5 I say that is definitely the start of Hashi's. Crystal may be the only expection to primary hypo with secondary AI always being Hashi's. IF it can be argued that you have early Hashi's, then you have lowest antibody numbers I've seen with primary hypo/secondary AI.
Determining Hashi's at low levels of antibodies is of course subjective. You are supposed to have zero antibodies. Did you have TSI tested Crystal? I recommend you get it. You can have TSI in Hashi's, though it's usually not tested. You might as well see what it is. Thanks Crystal.
Chris
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Post by crystallyn on Dec 23, 2008 10:44:39 GMT -5
Hi Chris-
I can't remember what TSI stands for. I had a ANA(I think) test which came back negative but I don't know how accurate that is. OK, I'll test...
BTW-You asked me at dinner if I had problems with my leg, I think. I can't remember what you said. For the past few days my lower left leg has been numb, can't even feel it. My left hand fingers are starting to get numb as well, usually in the evening.
I went to a random doctor yesterday cause I've had a bad "cold" for 3 weeks. I can't smell or taste anything. Well, it's a sinus infection with a temp. of 97.1. The doctor wanted to put me on dex. for my leg until I told him that I was already on medrol--doctors really should read those forms that we fill out in the waiting room. Anyway, no dex., and I got a lecture about how medrol is bad compared to HC. Now I get to take anti-biotics. I called Dr. Sultan's office and now I get to take diflucan as well.
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Post by Chris Jackson on Dec 24, 2008 10:32:15 GMT -5
It stands for thyroid-stimulating immunoglobulin. Mostly associated with Grave's, but some Hashi's have these antibodies.
I asked you if you had problems with calf pain.
He tells you that medrol is bad, but wanted to give you Dex? What does he think Dex is? Would have been interesting to see if the dex would have helped you since medrol doesn't seem to do much for you. Another doc that doesn't know much.
Hang in there, Chris
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Post by crystallyn on Dec 24, 2008 11:15:40 GMT -5
Yeah, funny huh? I was surprised when he said I needed dex. for my leg.--it's still numb. I said that I should've stress dosed better for this infection and he said that cortisol doesn't rise when you're sick. LOL. I was too tired to discuss it with the doctor. I just wanted the anti-biotic. I'm sitting there dying and he says that medrol will cause bone problems. He didn't even ask how much I was taking. My doctor(here) who prescribes medrol and agreed with my hypoP. doesn't see sick people so I had to see his PA--LOL. The PA was surprised that Dr. J. would prescribe medrol, I bet they're going to talk about me--LOL. Right now I need to get through Christmas and this infection. TSI? that would be interesting.
I hope you and Holly have a Merry Christmas. ~Crystal
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