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Post by dseezs on Feb 8, 2009 19:17:52 GMT -5
Hiya, Feelin crappy. Just thought I'd add my B/P's and temps for yesterday and today. Feb7 Up 8AM, took 10HC, 1/2 tsp salt, 15 Thyroid, 99mg Potass. at 8:30 AM 9:22AM 128/82-84 11AM Sitting 112/79-79 Standing 110/77-94 Temp 99 2:10 PM Sitting 106/75-87 Standing 101/74-103 Temp 99.4 5:30PM Sitting 117/83-78 Standing 110/73-90 9:23 Random 146/89-70 Sinus (forehead and temples) headache, numb tingly left hand, chest ache, feel yucky Today Didn't sleep well last night, lower back ache last few nights, headache (same as yesterday) chest ache (center) Up at same time meds and salt same time 8:42 AM 123/95-117 9:13 AM 119/81-88 Randoms 11AM Sitting 115/76-73 Standing 107/78-91 Temp 99 11:52AM 127/80-78 Random 1:40PM 133/79-92 Random sitting a pcc 2:15 PM Sitting 115/78-84 Standing 109/78-100 Temp 99.3 4:26 PM 130/82-81 Random 5:40 PM Sitting 124/81-83 Standing 111/79-101 Temp 99.6 All meds and salt taken at same times daily. 8:30 AM, 12:30 PM, 4:30 PM and 10 PM. 10HC-7.5-5-2.5, Thyroid 15 4x, salt 1/2-1/4-1/4-1/4 Potassium 3x 8:30 AM-12:30PM-4:30PM Temp averages for last 3 days 99.3-99.2-99.3 Think it's an infection somewhere? Highest temp before 98.8. That was 5 days ago. I was waiting for my temp to go down not up. What do you think? Thanks Deb
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Post by Lethal Lee on Feb 9, 2009 0:34:17 GMT -5
Hi Deb,
Those Bp's look OK meaning they are not high. However they are consistently dropping meaning electrolytes are still an issue so no surprise there. Also the Bp's are far too low when standing.
Your temp s are high. This may mean an infection whether viral or bacterial who can say.
Alternatively it may be related to the electrolytes being low/imbalanced. I was hot sweaty heat intolerant & often my temp was high when my electrolytes were off. Once I fixed them then temp dropped a lot revealing the true severity of my Hypothyroid condition.
Good that you increased Potassium from 1x99mg to 3x99mg. All I can say is keep going. I would double those doses & keep on increasing.
Sea Salt you increased too now on 1 1/2 teasp spread throughout the day. Again I think you need to keep on increasing. You used to be on 2 3/4 teasp early on.
So keep on increasing BOTH Potassium & Sea Salt. Suggest aim for ~1200mg Potassium & 2 1/2-3 teasp Sea Salt. All you can do is see if you can get electrolytes under control with just the supping. If not the only other alternative is Florinef which I know is costly for you unless you can get a script for it.
As far as feeling lousy now I feel its a combo of low HC, the electrolytes & possibly Adrenalin as well. Possibly an infection/virus too. Lets not forget pretty bad HypoT as well.
So IF you have enough HC on hand I would suggest a stress dose is in order. Perhaps doubling your HC for just one day may be a good idea?
Good luck & crossed fingers for you with the Doc appointment.
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Post by dseezs on Feb 9, 2009 21:13:33 GMT -5
Hi Lee, Today turned out alright all the way around. I'm still trying to believe my good fortune today. The Doc. wrote me scripts for HC AND Florinef. She is willing to help me so far. She is under the assumption I believe that another Dr. put me on HC and I guess I'm leaving it at that for the time being. She knows how I was treated at the ER and is also trying to save me some $ as she is aware of my financial bind. She did however want me to add a few more tests to my list. Tests ordered are: Phosphorus, DHEA, CBC/w Diff,Magnesium,Ferritin, Vit.D, Electrolytes,and a Thyroid Panel w/ Frees and TSH. I'm kinda nervous that she really wanted that TSH and the DHEA. I'm not sure why she wanted the DHEA, but I'm worried I might have an argument on my hands when it comes to the Thyroid. The DHEA I'm wondering if she will use to somehow check or use for my HC dose. I'm alittle apprehensive but I guess she could suprise me again like she did with the HC and Florinef today. I have the blood draw tomorrow AM. The results will probably take about a week. She gave me RX for 25 HC daily and a 3 mo. supply! I'm shocked. The price for this is equivalant to what I was paying for 1 mo. before. The Florinef she gave me I can't read the dose but it is for 90 days plus 3 refills. Didn't get the price for that yet. My next appt. with her is in 4 wks. I'm not sure why so long but I'll take what I can get for now. I'll have to wait and see how the next few appts. turn out before I'm jumping up and down about my good fortune. But today she made my life a little easier and seemed to be onboard for the most part. I told her what I had been taking so far with the salt and Potassium and they seemed to think I was taking an awful lot of Potass. I told her that my blood work would show that I'm not. So I'm thinking that I might be able to get a RX for that too. I have Westhroid on hand so I never asked out that. I'm sure it will come up in the next few visits. I guess I'm going to be playing this by ear for the next few visits. I'm still having problems with what feels like fluid in my chest and head. Hard to breathe when I lay down and runny nose off and on standing. I'm afraid it's gonna get worse as I continue to rise w/salt. Any ideas? She wanted me to do another Aldo. test but I said there was no way I was gonna do without my salt right now and besides that it's the wrong time of the month. She looked at me in disbelief and hopefully when I take the other 2 results into her she won't be too put off. That's it for today! Hope you are safe!!!!!!!!!! And well! Thanks Deb
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Post by Lethal Lee on Feb 10, 2009 3:23:35 GMT -5
Oh Deb,
Scripts for HC & Florinef thats absolutely wonderful!!!!
3 x99mg Potassium is a lot??? I wonder what she would think of my 3000-3600mg Rx Potassium mmmmm?
It would be great if she would do Rx Potassium for you. I suspect it may well be something that really helps you optimise & balance the Florinef & Sea Salt.
Phosphorus, DHEA, CBC/w Diff, Magnesium, Ferritin, Vit.D, Electrolytes and a Thyroid Panel w/ Frees and TSH
Note DHEA & Ferritin need to be done early am fasting. DHEA peaks in am & Ferritin can be affected by what you eat so 10-12 hour fast is best. Meds & supps should be taken AFTER blood draw & not before (including Sea Salt).
Well with low/suboptimal Vit D is it good to test Phosphorus & Calcium (corrected) but also to test PTH (Parathyroidhormone). In fact thats the 'best practice" recommendation BEFORE supping Vit D in case there is ParaThyroid problem causing the Vit D issues.
Serum Magnesium is not that good a test. Red Blood Cell Magnesium (RBC Magnesium) is a better one but may be more difficult to find a Lab that tests it.
Testing DHEA in isolation is not very helpful. Although some Docs like to test it as a means of 'judging' Adrenal health. HC of course lowers DHEA & therefore Testosterone as well. As far as seeing whether you are low/deficient & possibly need DHEA HRT the better test is DHEAS. Also Total and Free Testosterone with SHBG should really be tested at same time. Of course as we age DHEA levels drop too so using that alone to try & adjust HC dose will leave you undertreated. Better to dose HC adequately & do DHEA HRT to optimise DHEAS/Free Testosterone levels.
About your Thyroid are you saying you didnt tell her about Thyroid meds as yet? I assume from what you've said you didnt take your test results in with you?
She wanted me to do another Aldo. test but I said there was no way I was gonna do without my salt right now and besides that it's the wrong time of the month. She looked at me in disbelief and hopefully when I take the other 2 results into her she won't be too put off. Well she obviously isnt aware of testing on day 3 (or at least first week of cycle) & 24 hour Salt fasting requirement. Dont be too harsh though as she did RX you the most important meds at least. Not any point in retesting Aldo/Renin once on Florinef either. As you say you already have plenty of proof of low Aldo/Renin.
I'm still having problems with what feels like fluid in my chest and head. Hard to breathe when I lay down and runny nose off and on standing. I'm afraid it's gonna get worse as I continue to rise w/salt. Any ideas?
Well as I said in other post it is possible you have a virus or some other infection. However I think it more likely it is the electrolytes that are the issue.
Are you intending to restart the Florinef? Hopefully you wont need as much Salt as you go up on the Florinef.
Otherwise if you are going to try just Salt & Potassium I think you need to do as I suggested & greatly increase both. Such a pity you dont have RX Potassium now to try.
In addition did you try the doubling HC for one day & see if that helps build up the reserves & reduce some symptoms?
Cross fingers this Doc continues to be a good support for you. Goodness knows you needed some.
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Post by dseezs on Feb 11, 2009 19:25:30 GMT -5
Hi Lee, I have to ask to make sure I'm on the right track. On Feb 4 I upped my HC to 25. Since doing so my temps have been: Feb 4 98.8 Feb 5 99.2 Feb 6 99.3 Feb 7 99.2 Feb 8 99.3 Feb 9 no temps Dr. appt very busy day Feb 10 no temps Bloodwork and company another busy day Feb 11 99.3 Went up on salt and potassium on Feb 7 1/2-1/4-1/4-1/4, 99mg Potass. 2x upped Potassium again Feb 9 to 99mg 3x. I was planning to raise salt and Potassium again tomorrow. To this 1/2-1/2-1/4-1/4 and Potassium 99mg 4x. Does that sound OK or do you advise something different? I also wanted to ask about my temps. I know I didn't get them for a few days,but was wondering if you would consider them stable at 25 HC? Things seem to be going alright for the most part (except the fluid in head and chest) I'm living with it for now and it's not horrible bad. I also forgot to tell you that since my ER visits I have lost 10 lbs. It didn't even occur to me to check my weight until yesterday as I was getting annoyed at having to pull my pants up all the time. I went from a 36 in. waist to a 34 in. Is that good or bad? Just wanted to check in. Hope all is well Thanks Deb
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Post by dseezs on Feb 13, 2009 18:16:42 GMT -5
Hi, I got some fasting test results back. CBC With Differential/Platelet WBC 8.5 (4.0-10.5) RBC 4.85 (3.80-5.10) Hemoglobin 14.9 (11.5-15.0) Hematicrit 45.2 HIGH (34.0-44.0) MCV 93 (80-98) MCH 30.7 (27.0-34.0) MCHC 33.0 (32.0-36.0) RDW 14.3 (11.7-15.0) Platelets 215 (140-415) Neutrophils 51 (40-74) Lymphs 38 (14-46) Monocytes 9 (4-13) Eos 2 (0-7) Basos 1 (0-3) Neutrophils (Absolute) 4.3 (1.8-7.8) Lymphs (Absolute) 3.2 (0.7-4.5) Monocytes (Absolute) 0.8 (0.1-1.0) Eos (Absolute) 0.2 (0.0-0.4) Baso (Absolute) 0.1 (0.0-0.2) Comp. Metabolic Panel Glucose 93 (65-99) BUN 15 (5-26) Creatinine, Serum 0.71 (0.57-1.00) BUN/Creatinine Ratio 21 (8-27) Sodium, Serum 136 (135-145) Potassium, Serum 4.4 (3.5-5.2) Chloride, Serum 104 (97-108) Carbon Dioxide, Total 21 (20-32) Calcium, Serum 8.7 (8.5-10.6) Protein, Total, Serum 6.4 (6.0-8.5) Albimin, Serum 4.1 (3.5-5.5) Globulin, Total 2.3 (1.5-4.5) A/G Ratio 1.8 (1.1-2.5) Bilirubin, Total 0.7 (0.1-1.2) Alkaline Phosphatase, S 56 (25-150) AST (SGOT) 14 (0-40) ALT (SGPT) 16 (0-40) Phosphorus, Serum 3.0 (2.5-4.5) Magnesium, Serum 2.3 (1.6-2.6)
All on 25HC, 60 Thyroid, 99mg Potassium 3x, 500 mg Magnesium, 1200 Calcium, 4000 Vit. D, salt 1/2-1/4-1/4-1/4. Still waiting for results of Ferritin, DHEA, Vit. D, and Thyroid Panel. I have increased Magnesium, Calcium, Salt and Potassium today. Do I need to do anything about the Phosphorus or anything else? Thanks Deb
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Post by dseezs on Feb 16, 2009 1:16:48 GMT -5
BUMP Need some help, Lee! More test results today. TSH004264 1.321 (0.450-4.500) Triiodothyronine, Free, Serum10389 3 (2.3-4.2) T4, Free(Direct) 019745 0.91 (0.61-1.76)
Vit D 25-Hydroxy 63.3 (32.0-100.0) Dehydroepiandrosterone (DHEA) 523 (110-554) Thanks Deb
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Post by dseezs on Feb 18, 2009 11:18:36 GMT -5
Anyone, I've been increasing my salt. Upto 1/2-1/2-1/2-1/4. I tried increasing Potassium to 99-99-99-99. That lasted 2 days and then I had to back down as my left arm, shoulder and chest ached. I'm having diarehha(sp) thru all of this. I;m having problems with my B/P-HR going high. Iknow my electrolytes have to be off but I can't convince the Dr. nurse here of that. She just told me to go to the ER again. They told me I was OK last time. My B/P-HR this AM 8:06 126/89 88 9:01 126/100 128 1/2 cig 9:17 145/102 115 1/2 cig 9:29 141/98 105 9:41 131/88 95 9:50 132/93 87 10AM 129/88 86 Took 10HC, 1/2 tsp salt, BComplex, 99mg Potassium, 1000B12 and 600 Calcium at 8:30 AM. Not sure how to go about starting the Florinef without knowing where my sodium and potassium levels at. 11AM Sitting 136/87 71 Standing 123/87 88 Temp 98.1 I need some help. Don't know what to do. The Dr. office just called. I'm supposed to start 1 Tab Florinef and another med call Metroprolol (betablocker). The nurse never bothered to ask any questions and was thoroghly annoyed with me when I asked to speak with the Dr. Needless to say I never got to talk to the Doc and was given an appt. for Fri AM. Still wondering what to do next. Do I start 1/4 tab florinef in the morning? Help!!! Thanks Deb
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