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Post by dseezs on Dec 3, 2008 13:18:48 GMT -5
Sorry Lee I don't wish to make you rack your brain when you don't feel wel. But I really am scared and not feeling well. It's 12 noon here. I waited til 1/2 hr. past my usual time to take my meds and salt. I figured I'd either get over this a bit or I wouldn't get up at all. I took 3/4 tsp salt, 1 Tab Florinef, 1mg Medrol, 5mg HC, and 99mg Potassium with water. No Food. The thought of food gagged me. Cold shakey and tired. I then went and layed on the couch. I fell asleep for 1 hr. I stayed laying down on the couch and did B/P siting and standing. 125/80-71 to 126/86-92. I then felt like my stomach could handle some food so I ate 1/2 fried egg, 1/2 sausage patty, 1/2 pc. cheese and 1/2 c yogurt. Then I layed back down. 10:36 AM. At 11:06 115/76-73 to 117/84-93. Went to the bathroom and layed back down. 1/2 ciggy. 11:48 AM 112/77-76 to 124/83-97. Had lost my thermometer in the couch. Temp was 98.7 Dull headache on forehead and temples. Noticed mouth is dry, must be from not breathing thru nose. Feel tired and somewhat hungry. Think I'll try more food. What are your thoughts? I didn't expect this and am apprehensive about another long night up ahead. This stinks so bad. And I'm so sorry to bother you. Thanks for your help. Deb
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Post by dseezs on Dec 3, 2008 13:41:16 GMT -5
Dear Lee, Forgot to tell you HAPPY BIRTHDAY! Thanks for all you do for me and everyone else! ;D
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Post by dseezs on Dec 3, 2008 16:18:27 GMT -5
Lee, Just took my 2nd dose of Medrol for today. Temps are up today some from yesterday. I forgot to add that one other thing has happened in the last 24 hrs. I got my period. Could that have any affect on what's going on? I don't know what to do at this point. B/P 2:12 PM 123/77-62 to 120/80-100. Temp. 98.6 3PM 128/78-62 to 127/85-92. Should I add the HC back in that I dropped? Should I drop 1/4 Florinef? Add more salt? It's now approx. 5:15 PM here. I ended up adding the HC back in that I had dropped. Will see how that goes. I was feeling a bit shakey. Have eaten some food. Temps since dropping 5HC were 98.5,98.6,98.5, and 98.7 today. So I've added the HC back in a left everything else the same. Hope you are feeling better and get a chance to check this out soon. Thanks Deb Thanks Deb
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Post by Lethal Lee on Dec 3, 2008 20:46:34 GMT -5
Hi Deb,
I'm feeling much better still a little tired but otherwise fine. I'll be back to posting properly tomorrow I think.
I suspect that it IS your period that is affecting things. Progesterone is at its lowest then so less to convert to Aldo. Some people find they need additional Sea Salt at period time. I would think once switching is done & we can tweak your Florinef dose we can eliminate the worst of the fluctuations. so this doesnt repeat evry month.
Your BPs have come down but your HR is much the same. Encouraging that BP is not dropping much & actually increasing most times. The higher BP's before certainly suggests Adrenaline was a factor.
Try some additional Sea Salt spread throughout the day. Take the extra HC but treat it as a stress dose. You can drop back to the switching schedule dose as long as you dont stress dose for more than 3 consecutive days.
If the stress has increased Adrenaline then carbs/sugars will be low. Keep eating good fats & carbs every 2-3 hours to minimise blood sugar fluctuations. Make sure you have a snack before sleep too.
If you have similar sleep problems tonight make sure to have snack & salt water by your bed. And have small HC stress dose there to take if the food & Salt dont work well enough. Dont keep getting up & going downstairs. If you want to do BP do it while in bed have the machine handy.
And if worse comes to worse just try & stay calm & relax. Better to be awake & quietly reading (maybe drink of warm milk with a little honey) than toss & turn stressing about not sleeping. A quiet read is STILL resting although not as good as sleep of course.
Allow yourself to nap during the day if you have a bad night but be aware that if you sleep too long or too late in the avo it will get your day/night turned around & make it diificult to sleep at night.
However better to have some sleep at whatever time that none at all.
Let me know how it goes.
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Post by dseezs on Dec 4, 2008 13:09:51 GMT -5
Hey ya Lee, Happy to here you are feeling better. I'm feeling better also. Last night went way better with the addition of 1/4 tsp salt. Slept all night. B/P's are low and dropping some, I'm a bit shakey if I get up and move around too much but it's better than having to lay around all the time. Don't feel like passing out anymore! The added HC felt like maybe too much by the time the Medrol kicked in so I don't know if I'll be using that again today. Will have to wait and see how the day progresses. I'm assuming I'll be playing by feel and B/P's how long to keep the added salt? Hoping your day goes well, Deb
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Post by dseezs on Dec 5, 2008 13:04:30 GMT -5
Hey Lee, Still trying to get added salt in right places. Felt alright with 1/4 tsp added at nite. Afternoon not so good. Tried 1/4 afternoon, that went alright, then night not so good. Today will try 1/4 tsp in afternoon and 1/4 tsp night and see how that goes. So I'll be trying 3/4 8:30 AM, 1/2 12:30 PM, 3/4 4:30 PM, 3/4 8:30 PM. All of this and still on 1 1/4 Tab Florinef. I was on schedule to add more Medrol today, but didn't for fear of mucking things up further. I'm stuck on that one thing at a time again so I can wrap my head around things better and make more sens of them. Not too sure that works out for me either. LOL I guess I'm trying to keep a sense of humor today which I'm taking as I feel better but not. I s'pose by the time I get this speed bump figured out it will be time to change things back around again. Which would be par for the course for me. Heh,heh. I know I'm slow, but I'll get it eventually. Thanks Deb
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Post by Lethal Lee on Dec 6, 2008 7:32:11 GMT -5
Hiya Deb,
You are doing fine. Just adjust the Salt as you feel you need to.
Add in the next Medrol when you feel you are ready.
I think its best to finish the switching first before attempting to adjust Florinef. But that doesnt mean you cant adjust Salt to cope with symptoms.
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Post by Lethal Lee on Dec 9, 2008 2:28:32 GMT -5
8th Dec'08 you wrote
Hey Lee,
Deb (dseez) hormone support. Up again tonight! 1 AM here. Can't sleep.
I used 2 3/4 tsp of salt today. I upped the Medrol today. Somethings not right. I feel worse with every addition of Medrol I make. I feel like I'm over doing something or not doing something right!
I feel like I need to come back down off the Medrol and start over. I'm wondering if my high temps from before were totally from the low Aldosterone and not from the HC being to low. Does this make sense? I just know that I can't do this the way I have been because I don't feel any better I believe I actually feel worse than I did before!
I'm wondering what your take on this would be? I just don't feel good, Lee! Would you help me figure this out if I go back down? I've just got this nagging feeling I can't get away from. Thanks for your thoughts................ Deb
Hi Deb,
Sorry to hear you are feeling bad again.
Of course you can reverse the switching if you want. I do wonder if you may not feel better UNTIL the switching process is finished. You were not feeling well on HC after all (which is why you are trying Medrol) & although there have ben hiccups with the switching at times you have said you do feel better (but it doesnt last) at times.
If it was me I would continue with the switching wait until on ALL Medrol & give it at least 2 weeks once on all Medrol to evaluate how you feel.
I strongly suspect you are getting electrolyte changes impacting on how you are feeling. Add to that you are probably very Hypo as you are only on basic Thyroid meds till this is sorted.
But we tried upping the Florinef already & you felt worse so I said wait until the switch is complete so we can remove HC & its effects on electrolytes from the equation.
I do feel its worthwhile continuing with the switch. If it doesnt work well & good but stopping partway through you are not giving it a chance.
Perhaps you can try speeding up the switching a bit to reduce the adjustment pain? Maybe wait 2-3 days between instead of 5 days? And when you are adding in 1mg Medrol if you find you feel you are too high then cut the 5mg HC same or next day?
Then if you do the above at least the swtching will be finished a lot quicker.
Let me know how you are & what you think.
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